seizures in kids

briannell · Post by **briannell** » Mon Jan 16, 2006 10:53 pm

question to any docs or parents out there who've dealt with this. what do you do at night to monitor seizures? want to prevent any smothering by blankets or pillows but can't stare at child all night long. any tips?

thanks

BWahlberg · Post by **BWahlberg** » Tue Jan 17, 2006 1:16 am

Rebecca,

Can't say if this helps, my son had a feveral seizure when he was 7 months old. Happened when he was at my wifes parents house, scarry thing. We've been told now that he's had one, he's likley to have more, chances are it'll happen when he runs a high fever or is about to. We inquired about what we should do to monitor him and the doctor said that in the evenings to consider moving his crib into your bedroom, or just check on him every couple of hours.

Also someone I know has a little brother who has seizures. Although I didn't pay attention to it at times, they really didn't do much to monitor him when he was younger (over 18 now) except keep him in the bedroom next to theirs.

briannell · Post by **briannell** » Tue Jan 17, 2006 10:47 am

thanks Brint,

I am hovering over her, so i'm not getting any sleep. Been doing this almost 3 years now, although the seizure episodes just started friday. I'm good at cardiac, onco (bone marrow) and MRSA issues, this just means i'll have my honorary MD in general medicine I guess by the time we're done

Docs are still "reviewing" I hate the wait game, so we're just supposed to watch her at home now.

Is your little one okay? we were told that it could be a fluke 1 in 6 case and never happen again, but her episodes were violent and with HX like hers we're being careful.

on a side note - our sweet little ER doc turned out to be alumni. kept looking funny at us and stated you look familiar and proudly announced " i went to Montana State!" so at least i know when I go coo coo from all of this our doc comes with a good education

BWahlberg · Post by **BWahlberg** » Tue Jan 17, 2006 4:20 pm

Rebecca,

He's fine, feveral seizures 99% of the time do not cause brain damage, in most cases they aren't even cosidered harmful. Is that what has happened to yours?

Its frightening, scared the daylights out of my wifes parents. I'd never seen her dad cry, ever, and he was in pretty rough shape after that event.

Reese (my son) was back to normal the next day when he woke up, similing, giggling, crawling. We were also told theres a 1 in 6 chance it could happen up until he's 7 years old, which sucks, but what can you do?

briannell · Post by **briannell** » Tue Jan 17, 2006 5:24 pm

Brint,

so glad to hear Reese (I like that name by the way) is alright. What happened to Anessa was really freaky. brian and I were playing peek-a-boo with her and Ben and all of a sudden she fell backwards her eyes rolled completely into her head, her body was stiff and twitching like a fish out of water and she was foaming at the mouth. she also was making this horrible noise like she was drowning on her tongue. this lasted about a minute, afterwards her eyes opened, but she had no response to us. she laid there like a doll, her breathing was okay, but she was completely out of it. about 5 minutes later she said night night, and tried to goto sleep but she was limp and drooling. they checked her for a stroke because she has a heart condition that can throw clots up to the brain - hence a stoke would be that reaction. she went to the ER room at Ft. Lewis it was the closest hospital, they got her in immediately that was almost 7 PM, ran a bunch of tests, x-rays, ordered MRI but are still evaluating her condition. she's still acting funny, but I was sent home to watch her, because I have some medical training and am home all the time anyway.

I was a complete psycho - i can't believe i wasn't admitted and given serious drugs - can handle anything an athlete can suffer as far as injuries and be calm and collected, when it comes to her i am anything but that. my practical/logical side is actually a man, and men are great for that. like your father-in-law brian was horribly upset, yet still logical under the stress. kudos for dad.

funny where you meet alumni, Justin Madill was our ER intern doc, great at taking orders and very patient with me. He called all of her specialists at children's before messing with her, so she didn't have any unnecessary testing. He's going to be a really fine doctor I think, and he's a nice guy too

BWahlberg · Post by **BWahlberg** » Tue Jan 17, 2006 7:41 pm

Wow,

I really hope the best for your daughter and your family. If you don't mind PM me when you get word, and I'll keep her in my thoughts. Its such a frigtening thing. I hope that everything works out for you.